Saturday, November 22, 2008

Encopresis Support Groups

Please go to the following link to sign up for an Encopresis Support Group http://health.groups.yahoo.com/group/encopresis_kids/

This group was formed to support parents with children who suffer from encopresis.


Here are some other resources

http://au.messages.yahoo.com/lifestyle/teenagers/481?p=1

The Yahoo Group on "miralax" alternatives if your child is on laxatives.

http://health.groups.yahoo.com/group/miralax/

And here is a program that has worked for many people who were at the end of their rope, so to speak. Soiling Solutions: http://www.soilingsolutions.com/

If you are dealing with this issue, know that you are not alone. God bless.

18 Comments:

Blogger Kyla said...

Glad you found a group! That must be such a relief.

I won't be joining the Miralax group, because, well, we haven't experienced negative side effects and even if we had, I'd prefer them to a perforated colon, which I am quite sure she'd have had by now without it. ;)

7:35 AM  
Blogger mamatulip said...

I have a friend whose daughter went through this, I believe. If you'd like, I can give you her email address; I'm sure she wouldn't mind. Just let me know.

12:00 PM  
Blogger Brooke Groelle said...

My son did the same thing... he eventually got over it!!!
It sucks.....
I know you know that!
The longer they hold it the harder it gets *literally* and then it hurts and the hurting part is what they are afraid of. Sometimes poop hurts... TMI-right??? But, changing the diet seemed to work with us. Eliminate any foods that may constipate (too much milk was our culpret) add more fruits and use bribery. Hope that helps a little....

8:42 PM  
Blogger Mommy off the Record said...

Thanks, Brooke! Good to hear your son got over it. How old was he and how long did it take?

We also eliminated dairy a few months ago and do whole grains, etc. We also supplement him daily with Fruit-Eze (prunes, raisins, date concotion), prune juice, Natural Calm (magnesium), probiotic and Kidlax. In addition that that, he is currently on Miralax. And still....he can hold it in!! The bribery is key for us. We have to keep his BMs really soft (sorry for the detail) AND bribe the hell out of him to get him to even push a little on the potty. Yesterday, the poor guy was in tears sitting there at just the thought of pushing. And I KNOW it hasn't hurt him for a looooong time because he stools are super soft.

9:35 PM  
Blogger jody said...

Hi, My name is Jody and my daughter has severe encopresis. She is 9 years old, and has suffered from encopresis for most of her life. she is under the care of a paediatrician, dietician, continence nurse, psychologist, gp and others. i have been considering creating an online support group for some time, but if there are already some out there, then that is great. we thought we were alone, we spent the first 5 years trying to get some help and someone to realise that we had some serious issues and now we are at a stage that they don't know what else to do for her. i would love to be in contact with some one else who is going through it. if we can pass on what we have learnt, then that is great, but just someone who understands what it is like to have (as some parents have put it) "the stinky child". please feel free to email me: jody@JodyRMurphy.com.au

4:33 PM  
Anonymous LisaLisa said...

My 7-year-old daughter has had this problem for more than a year now. She is on Miralax and it helps to keep her stool soft, but she still refuses to go on the toilet and continues to "leak" all day every day. If anyone has any other advice that has worked for them, please let me know. I feel really bad for her and it is very cumbersome cleaning her up all the time. God Bless and thanks in advance, LSantarelli@msn.com

3:51 PM  
Anonymous melissa said...

Hoe good to hear how other people are going through this also. I need help with my almost 6yr old son. He is on Movicol and still withholds. He started school this year and they do not know how to deal with him when he is "full". He can't sit and gets very distressed and school argues whether he should be there or not...He is not very verbal and possibly on the Autism spectrum. I don't know how to help him anymore... ANY ideas/suggestions will be appreciated. from worried mum melissa.
mballantine76@bigpond.com

6:40 PM  
Anonymous Anonymous said...

Hallelujah... just gave my 3 yr old 1/2 mg diazepam (antianxiety muscle relaxant) and she did biggest poo !!!on loo even...(backlogged for weeks and softened by movicel etc). I realised she was just too frightened to go incase it hurt again like when constipation was hard.... so if you desperate... highly recommended ... a tiny dose only required

7:51 PM  
Anonymous Anonymous said...

My 4 yr old son has had this problem for about a year. We have been going to an encopresis treatment center. We have done the Miralax and mineral oil morning and night every night, and exlax off and on. He has finally gotten feeling back and has control, but will not go in the potty. The specialist said to put him in underware and have him wash it out himself if he soils. He did really well at home last night, but continued to refuse to go in the potty at day care. The head of the center says if he does not start to go she must insist that he go back into pull ups.

We need to register him for kindergarten. The private school, where his brother goes cannot accomidate him. So I paid the 300.00 dollar fees for both the public and private schools...just in case. We have tried everything... bribes..etc. At one point my husband was going to offer him a puppy. I just about lost it. It is so hard.

5:47 PM  
Blogger Seattle Mom said...

My son suffered with encopresis. At one point I didn't think we would be able to send him to kindergarten. We went to the Encopresis Clinic. He is now doing really well. It took about a year and we are still on miralax and mineral oil.

11:48 PM  
Blogger Seattle Mom said...

My son suffered with encopresis. At one point I didn't think we would be able to send him to kindergarten. We went to the Encopresis Clinic. He is now doing really well. It took about a year and we are still on miralax and mineral oil.

11:48 PM  
Blogger Seattle Mom said...

This comment has been removed by the author.

11:49 PM  
Blogger Steph said...

I know this is an older blog post, but my daughter suffered from encopresis and we found a way to rememdy her problem and I started my own blog for other moms dealing with this. Is the yahoo group still active? My website is www.momsguidetoencopresis.com if you care to reach me!

6:15 PM  
Anonymous Anonymous said...

Ok so after reading the other comments from others who are having the same troubles am comforted to know im not alone in my frustration. My 4yr old son has been holding for about a year now and it's been forever since his last BM. Help not sure what to do. Have tried miralax and stool softners, is there anything else besides going back to the pediatrician??

11:39 AM  
Anonymous Anonymous said...

my oldest who will be 7yrs old later this month took mira lax at age 3mos to almost 3 yrs old. i hated giving it to him something never set right in my gut when i did. but the docs just kept pushin it and my family did to. so i would give couple doses he would go then i would stop he would go good for about 2wks to month then he would stop havin bowel movements and i would once again beat myself up for a day or 2 the whole time pumpin him full of any vitiam c high juice i could lay my hands on then i would cry give in and dose him with mira lax again. at around age 1 1/2 to 2 yrs i started noticin how his behavior changed when i dosed him with the mira lax. yes i had noticed it b4 but didnt put 2 and 2 together til then. his docotor told me i was stupid and to keep givin him the mira lax. so i did and god forgive me for it. i wish i never gave my sweet baby the first dose i wish i had told em to shove it up their butt. i read all the info on the lil barely visable paper and even talked to the doc about it. they informed that all meds have side effects he would be fine. The last time i gave it to him he had been unable to go for a wk or so my mom kept tellin me give that baby his miralax so i did and i told her watch how he starts hand flayin, spinnin, loses eye contact starts losin the few lil words he has this is within 30 mins after a dose. She saw this change in her grandson and threw the med in trash and said wth did the docs give him that crap for. she had sent these behaviors b4 but just thought it was who he was not a med doin it. Today he doesnt talk, has barely any eye contact, still does hand flay time to time, has weak motor skills in his fingers and hands. and his only vocal sounds r the sounds most kids make as a baby. and sometimes very rarely will pop off a word.
u can contact me @ my email ssptalk@ymail.com

1:11 AM  
Anonymous Anonymous said...

My son is 4 now and has only done a poo 3 times this year, my doctors and the school nurse tell me to give him some child laxitive thing but it made him so ill he did eat or drink and he just layed on the sofa all the time I gave him this. He keeps messing himself and refuses to do a poo on the toilet, I've left him with books and games to play I've even sat with him for 2 hours singing songs and talking but he still won't go. He goes through about 10 pairs of pants a day. I really don't know what to do here.

11:33 AM  
Anonymous WorriedWendy said...

I am so glad there is support for this issue. My son has been suffering from encopresis for 5 years and we have seen all the dr's, pyschiatrists and therapists and there is no change. We are both so tired of dealing with this day to day, it is affecting his self-esteem, confidence and overall attitude and I don't know how else to help. Any suggestions are welcomed! WorriedWendy

5:57 PM  
Anonymous Wendy said...

I am so glad there is support for this issue. My 11 yr old son has been suffering with encopresis for 5 yrs and we have been to every dr, therapist, psychiatrist and no change, I believe it is getting worse. He is so tired of dealing with this all day every day and as a Mom I don't know what else to do. Any suggestions or advice is welcome. We need help. Thanks, Wendy

6:03 PM  

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